As a mother, one of my biggest concerns and worries is that something
horrible will happen to my children. Now I'm sure I am not the only
mother with this concern and not the only one who started worrying the
second I found out I was pregnant. Of course that only increased once I
began reading the multitudes of information about pregnancies and all of
the things that could go wrong. Then I was faced with the possibility
of testing for abnormalities with my babies and the worrying increased
yet again. My husband and I discussed the idea of what we would do if
something was "wrong" with our child and we agreed that we would love
this child and do everything possible to help them no matter what.
Thankfully everything was fine and our children came out just like every
other child, perfect to us, their parents.
Now a
friend of mine was blessed with a child not too long after me. When her
baby was born she was adorable, sweet and diagnosed with Trisomy 18. I
had never heard of this and had no idea what it would mean for my friend
or her beautiful little girl. I did some research but mostly I found
read my friend's facebook posts and blog where she began to explain this
journey she was going to be on. Doctors said that this beautiful little
girl would not live very long. She had a problem where her esophagus
did not reach her stomach, a heart condition and a few other
complications due to her having an extra 18th chromosome. Unforseen by
many doctors, this amazing, strong and courageous little girl thrived in
life for 9 incredible months before she became an angel. My friend
changed completely, appreciates life much more fully and appreciated the
amazing small accomplishments her daughter made that we sometimes take
for granted.
Recently, I found an amazing little boy
on facebook who was diagnosed with Trisomy 13. These parents were told
that he wouldn't live when he was born. That he wouldn't survive a day.
135 days of thriving incredible life later is when he passed to become
an angel as well.
Now
what these children have in common other than having Trisomy (a third
chromosome) is that thousands of people fell in love with them without
meeting them. They are miraculous little bundles of perfect innocence
wrapped in love and shared with others. It is so rare to be reminded of
the utter and complete perfection of a child and yet both of these
children did remind me. Both of these children defied the odds, thrived,
inspired, amazed and made me fall in love with them. Their stories made
me appreciate all that I have been blessed to receive and inspired me
to become more educated in understanding Trisomy. Parents of both
children have dreamed of spreading awareness of Trisomy and as a parent
and someone who loved these children I would like to spread that
awareness as well. If you are ever looking for a good cause to donate to
or would like to help please consider these non profit organizations:
Hope for Trisomy 13 & 18
P.O. Box 921
Springtown, TX 76082
SOFT (Support Organization for Trisomy)
2982 South Union Street
Rochester, NY 14624
If
you would like to learn some more about Corbin McHenry you can find
info on the facebook page made for him at
https://www.facebook.com/prayersforcorbinmchenry?ref=br_tf
Tuesday, August 20, 2013
Friday, August 16, 2013
Exciting News...
So in my last blog post I mentioned that we were working on new business ventures and now I am happy to share. For the past several months I have been working on obtaining my certification in event planning and have successfully completed (with a 99/100 patting myself on the back right now :) ). Although I am not creating my own business with this but rather working with an incredible and talented team that I am super excited to be a part of. My husband and I are also working on an etsy shop in which we provide paper goods (invitations, menus, banners etc.) for various events and parties. We did provide our own paper goods for the tea time baby shower for my daughter and which is currently on our etsy shop which you can check out at: http://www.etsy.com/shop/CaringExpressions?ref=shop_sugg and I have included pictures of the paper goods we made below.
So with these new business ventures I have decided to expand my blog, facebook page, twitter and pinterest...how you want to know? I am going to share my party planning knowledge with you. I will give theme ideas, food you can include, decorations, invitations...pretty much anything you ever thought about when planning an event I will give ideas. So here is my request of you, let me know via comment, facebook message, tweet or email what questions you have. If there is a specific theme you need help with let me know and I will be happy to help give ideas, advice or you can always request my event planning services. I will still gladly give gift ideas which people always need but I will also give so much more. Let me know what you want to know. Looking forward to sharing this new adventure with you as well as all the things I learn along the way.
So with these new business ventures I have decided to expand my blog, facebook page, twitter and pinterest...how you want to know? I am going to share my party planning knowledge with you. I will give theme ideas, food you can include, decorations, invitations...pretty much anything you ever thought about when planning an event I will give ideas. So here is my request of you, let me know via comment, facebook message, tweet or email what questions you have. If there is a specific theme you need help with let me know and I will be happy to help give ideas, advice or you can always request my event planning services. I will still gladly give gift ideas which people always need but I will also give so much more. Let me know what you want to know. Looking forward to sharing this new adventure with you as well as all the things I learn along the way.
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